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Research Ethics Grand Rounds
September 17, 2015 @ 12:00 pm - 1:00 pm
Please join us on Thursday, September 17, 2015 at Noon in 219 Brikhous-Buillitt for our first presenter for this semester, Jennifer Fishman, PhD, Assistant Professor, Bioemedical Ethics Unit at McGill University. Jennifer is also a Visting Scholar in the Center for Bioethics for the school year.
The title of her talk is, “Let’s Pull These Technologies Out of the Ivory Tower: The Ethics, Values, and Politics of Participant-Driven Genomic Research.”
In the last few years, the landscape of translational genomic research has been changing and is no longer confined to strictly academic research or institutionalized health care. New voices from advocacy organizations, direct-to-consumer (DTC) companies, hybrid forms of university/advocacy/corporate research groups, and most recently ‘citizen scientists’ are shaping significant outgrowths in both research and transmission of biomedical knowledge. Drawing on data from interviews with leading figures in participant-driven genomic research, this presentation will explore how these groups challenge and complicate traditional approaches to and the ethics of genomic research as the boundaries are challenged between experts and amateurs, funders and researchers, institutions and scientists.
Future 2015 dates are: October 15 and November 19. We look forward to seeing you there.